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Re: Communication methods for people with extremely limited articulation

From:Erbrice <erbrice@...>
Date:Tuesday, January 13, 2009, 17:01
there is an english version of communiquer sans parole here:
http://alis-asso.fr/ewb_pages/e/eng_alis.php? 
PHPSESSID=80b7a456a5d5d2d8b30001967ea17749

Le 11 janv. 09 à 21:07, Sai Emrys a écrit :

> I've just watched _The Diving Bell and the Butterfly_ (excellent > movie), and following some links, found a French locked-in syndrome > association. > > They have some information about "communication without language" > (only in French, though you can try your luck with an online > translator): > http://alis-asso.fr/e_upload/pdf/communiquer_2008.pdf > http://alis-asso.fr/ewb_pages/c/communiquer_sans_parole.php > > This reminds me of something I wanted to do last year, as I have a > similar problem, albeit rarely. > > There are times when I have been unable to speak or control my body in > anything more than very crude ways. A couple times, during atonic > seizures, I essentially had the exact same condition as the person in > the film - I could blink, and later grunt, but no more. > > More frequently, I find myself merely unable to speak; that's not too > bad though, since I'm moderately fluent in American Sign Language, and > I've always ensured my partners learned some. > > It seems to me that the methods described in the flyer (and portrayed > in the film) are both extremely cumbersome and don't adequately take > advantage of all the articulators that a person with LIS (or seizure) > may have. (E.g.: one can blink in patterns, have length be > significant, grunt softly, grunt loudly, etc. A good system would need > to abstract this somehow and accommodate some range of articulation > channels.) > > Thus, this seems to be a good candidate for medically beneficial > conlanging. > > Have any of you experienced this? Do you know of resources that give > the current state of the art for communication in similar situations? > > Would you be interested in collaborating on creating a better system? > > - Sai

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Sai Emrys <saizai@...>